2 weeks down

Robbie has now been in the hospital for 2 1/2 weeks. Anxiety comes and goes, but he is starting to feel a little more comfortable as the days go on. Lots of family and friend visits help to keep his mindset distracted.

His initial spinal tap showed no signs of cancer cells in his spinal fluid which was good news as he will not require double chemo treatments injected into the picc line in his arm and injected into his spinal cord. Unfortunately, the sample was not large enough and another spinal tap has to be performed this week just to be safe. Robbie’s physicians are confident it will show no signs of cancer cells, but would like to check again just to be 100% sure.

Robbie was able to see our son Rowan the day of Rowan’s birthday on 7/29. Visits with our kids are bitter sweet. Robbie misses them so much and being away from them is the hardest part about this whole scenario. The kids miss him too and express those feelings in a multitude of ways, such as verbally or emotionally. It’s hard to describe, but I see joy and sadness in Robbie’s eyes at the same time each day he was able to see them in person.

If treatment goes as planned his doctors are hoping he can be released from the hospital by 8/16/24. We are asking for payers that this will happen as planned.

There is a lot to do and plan for before Robbie returns home. I find myself lost in thought about all the changes we need to make in order to adjust to “the new norm” that will become our day to day life. I worry about the medical bills to come. I worry about how to manage the bills we have/had before. I worry about making sure I keep Robbie healthy due to his compromised immune system. I worry about our kids mental and physical health. I worry about my mental and physical health. There are 1000 thoughts that regularly bombard my mind right now.

We constantly have to remind ourselves to take on one thing at a time, one day at a time and try to remember to be thankful that Robbie is still here. We will post the entire story on another blog post about how this all came to light, it is long, it is wild, & it is surreal.

For now even though Robbie is confined to his hospital room he is doing everything he can to make sure he takes care of us the best he can.