Chapter 2 - Blincyto

I took a much needed break since the last blog post. Robbie has been home readjusting to the new norm, our daughter started 1st grade & our son is fully into his terrible 2’s. Everyone around me has told me I need to take time for myself, I need to take care of my mental and phsyical health, & and try to enjoy life as much as I can during all of this. I feel a pretty excessive amount of anxiety daily. Leaving Robbie at home and the kids for appointments is extremely difficult for me I cannot lie. I feel dazed and like I’m dreaming when surrounded by many people and being so highly conscious of not wanting to get Robbie sick or bringing anything home. It is difficult, … panic attacks are a common occurrence these days.

Robbie’s coworkers hosted a yard sale in which all of the proceeds are going to Robbie. We are very appreciative of this. If anyone is aware of another way we can fundraise for Robbie, I would appreciate those suggestions. Robbie has also been able to connect with family members he hasn’t seen in a long time.

Robbie’s bone marrow biopsy came back showing no cancer cells. Robbie is currently in remission. With that being said, blood and bone marrow cancers are tricky and Robbie’s bone marrow can decide to produce cancer cells at any time again. Time is of the essence currently. We are hoping within 3 weeks everything he needs to start his Blincyto treatment will be in order and that next chapter of treatment can begin. Robbie will be hospitalized for a few days during the first course of this treatment just to make sure he doesn’t have a negative reaction. We were told once the Blincyto immunotherapy treatment is completed he will move on to the bone marrow transplant.

We are praying he to responds well as it seems like most of his treatments will be during the upcoming holiday season. There is still a lot of anxiety over this whole situation.

Thank you all for your continued support, prayers, love, and kindness. Our words could never express enough how grateful we are for those who have shown any ounce of support.

Robbie will have a 3 week break starting today until the next course of treatment begins.

Robbie is home every day with our wild kiddos if you would like to visit with him, you can reach out. We’ve had offers from friends about making dinner for us and will be reaching out about taking you up on those offers soon as it’s been difficult to cook and maintain the household due to the exhaustion of all the stress that comes with battling this disease.

Once Robbie is ready to start his next treatment I will be going between home and the hospital with him until he is released. Again, we appreciate you all very much and we are looking forward to starting this treatment so we be a little closer to being cancer free and putting this all behind us.